Tag Archives: Cerebral Palsy

Review: Disfigured: On Fairytales, Disability, and Making Space by Amanda Leduc

Disfigured: On Fairytales, Disability, and Making Space by Amanda Leduc cover shows a forest of leaves with a cabin poking through. A disembodied ear, hand, and a crutch sit on top of the leaves.

Disfigured: On Fairytales, Disability, and Making Space
Amanda Leduc
Coach House Books
Published March 3, 2020

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About Disfigured

In fairy tales, happy endings are the norm—as long as you’re beautiful and walk on two legs. After all, the ogre never gets the princess. And since fairy tales are the foundational myths of our culture, how can a girl with a disability ever think she’ll have a happy ending?

By examining the ways that fairy tales have shaped our expectations of disability, DISFIGURED will point the way toward a new world where disability is no longer a punishment or impediment but operates, instead, as a way of centering a protagonist and helping them to cement their own place in a story, and from there, the world. Through the book, Leduc ruminates on the connections we make between fairy tale archetypes—the beautiful princess, the glass slipper, the maiden with long hair lost in the tower—and tries to make sense of them through a twenty-first-century disablist lens.

From examinations of disability in tales from the Brothers Grimm and Hans Christian Andersen through to modern interpretations ranging from Disney to Angela Carter, and the fight for disabled representation in today’s media, Leduc connects the fight for disability justice to the growth of modern, magical stories, and argues for increased awareness and acceptance of that which is other—helping us to see and celebrate the magic inherent in different bodies.

My Review

I heard about this book years ago from booktuber Jesse on YouTube, who read and recommended it. Sadly, it took me a long time to actually read the book myself, but I finally have! And I’m so glad I did.

This book explores fairytales through the lens of what it’s like to read them as a person with disabilities. The author not only shares her own experience as a girl with cerebral palsy, but she also quotes and shares stories of other writers and activists with disabilities as they share their own experiences as well.

One of the things I found the most impactful about DISFIGURED was seeing different fairytale characters and stories from this perspective. There were many things I hadn’t considered or was unaware of. It helped to break things down into tropes and themes and look at what those ideas say about the value or morality of those characters and through the characters the people represented.

For example, the author talks about how often in fairytales, characters with disabilities fall into two categories. Either they are noble characters whose disabilities become reversed because they were pure of heart or brave or noble. Or the disability is supposed to be evidence of an internal evil that remains a static part of the character’s nature.

There’s also some commentary about the differences in the roles of women versus men in fairytales, too. I enjoyed that a lot.

All in all, DISFIGURED is a really thoughtful book that explores familiar fairytales, where they came from, and what they teach us about who we are and what society should be. And asks whether we agree with those lessons and, if not, what we will do about it.

Content Notes

Recommended for Ages 14 up.

Representation
The author has Cerebral Palsy. She quotes other disabled writers and activists.

Profanity/Crude Language Content
Very infrequent extreme profanity.

Romance/Sexual Content
References to fairytale romance/weddings. Leduc recounts an early version of what became the Sleeping Beauty fairytale in which a maiden pricks her finger on a flax seed and falls into a magical sleep. A traveling king sees her and is so overcome with lust that he rapes her (not described in any detail). The author points out that the story never addresses the king’s behavior as problematic, wrong, or illegal.

The author references an essay written by a man with disabilities who openly talks about hiring sex workers to meet his personal needs. (No details beyond this.)

Spiritual Content
Discusses the origins of the fairy godmother/fairies in fairytales. Examines the Christian (Calvinist, in the case of the Grimm Brothers) roots or edits to many fairytales in subsequent editions. Mentions of magic in stories.

In one tale, the devil tricks a man into promising his daughter to him. The girl thwarts the bargain several times.

Violent Content
References to some gory elements of especially early fairytales. Cinderella’s stepsisters mutilate their feet to fit into her shoe. The evil queen in Snow White is forced to dance in red-hot metal shoes until she dies at the tale’s end. See romantic content.

The author also discusses the changeling myths and how people would leave their babies or young children in the snow to die of exposure if they believed the baby was a changeling. She briefly tells a story about a man who burned his wife to death. He claimed she’d been replaced by a changeling after an illness.

Drug Content
Mentions of magical potions or poisoned fruit.

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Review: It’s My Life by Stacie Ramey

It’s My Life
Stacie Ramey
Sourcebooks Fire
Published January 1, 2020

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About It’s My Life

If she wants a future with him, she’ll have to make peace with her past.

Jenna’s never let her cerebral palsy get her down. But when she discovers that her condition was actually caused by an injury at birth, she’s furious with her parents, who withheld the truth. And as they push her to get yet another difficult procedure, Jenna feels her control over her life starting to slip.

Enter Julian, Jenna’s childhood crush. He’s just moved back to town, and he’s struggling in school, so Jenna reaches out to him—anonymously— to help. Soon, their conversations are about so much more than class. She’s falling for him all over again, hard and fast. But would Julian still be interested in her if he knew who she really was? And can she find a way to take back her own narrative before she pushes away everyone she loves?

My Review

You know, just leave it to Stacie Ramey to create still more characters that I can’t help falling in love with. I really, really needed a solid, heartfelt contemporary book, and IT’S MY LIFE totally had me covered. I love Jenna’s awkwardness and her tendency to overthink things. I love her passion and her relationship with her mom.

Actually, I want to say more about her and her mom. Because I felt like that was a really complex relationship, since Jenna’s really pushing back against her parents’ assumptions about her medical treatment and care. She’s feeling lied to by her parents and unable to communicate to them her need to make her own medical decisions.

Though we only see Jenna’s point-of-view, I felt like it was easy to see that so much more was happening between the lines. Her mom felt like this real, complicated character with conflicting desires but a consistent commitment to her daughter. I don’t know if that makes total sense, but I just found myself having a lot of respect for Jenna’s mom because clearly she had a lot going on in her head and heart.

IT’S MY LIFE is at its core, a personal journey story. At the beginning, Jenna feels like her perfect life starring the cooler, better version of herself is completely out of reach. Jenna has two choices: she can sit back and let that life stay a fantasy, or she can pull together all her courage and figure out a way to make things happen for herself.

I love that theme in the story so much, and I think Stacie Ramey does real justice to the part of life where we must choose to become the main character in our own stories. I’m so glad I read this book, and I think it will really stay with me for a long time.

If you liked MY SISTER’S KEEPER by Jodi Picoult or IMPOSSIBLE MUSIC by Sean Williams, or just find yourself in the mood for an uplifting contemporary story featuring a strong protagonist, make sure you check out IT’S MY LIFE.

Content Notes

Recommended for Ages 12 up.

Representation
Jenna has Cerebral Palsy. Jenna and her family are Jewish. Her best friend Ben is gay.

Profanity/Crude Language Content
Mild profanity used fairly frequently. A couple instances of stronger profanity.

Romance/Sexual Content
Kissing between boy and girl. Jenna has some daydreams about lying in bed with a boy.

Spiritual Content
Some references to Jewish traditions and holidays.

Violent Content
Jenna witnesses a fistfight between two boys.

Drug Content
Jenna and a friend drink alcohol at a dance.

Note: This post contains affiliate links, which do not cost you anything to use, but which help support the costs of running this blog. I received a free copy of IT’S MY LIFE in exchange for my honest review.

Review: The Absolutely True Diary of a Part-Time Indian by Sherman Alexie

The Absolutely True Part-Time Diary of an Indian
Sherman Alexie
Little, Brown Books for Young Readers

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About The Absolutely True Diary of a Part-Time Indian

After a school incident provokes a teacher to challenge fifteen year-old Junior, he leaves the school on the Spokane Indian Reservation for an all-white school in a nearby town with better resources. At first, Junior’s new schoolmates shun him for being different, and at home, his friends shun him for being a traitor and leaving the reservation. Through cartoon drawings and frank narrative, Junior wrestles with his own sense of value and the value of his people.

My Review

Part of what makes this story so powerful is the fact that we see not only Junior’s internal struggles as he wrestles with his identity and value, but that we see the culture and people of the reservation through his eyes as well. We clearly feel his warring love and frustration. We cringe at the gaffs of (sometimes) well-meaning white people who come to the reservation or who interact with Junior at school.

I feel like it shouldn’t take a novel so poignantly written to take me outside my own point-of-view and really make me think about how things sound or come across, well-meaning or not. Sometimes it does take being forced to imagine life from a completely perspective in order to succeed in doing so.

The poverty in which so many of the families lived is portrayed so vividly. Sadly, stupidly, I had never even thought about this, and I’m ashamed to admit that. We talk about ending world hunger and people talk about children in the US being hungry, too. I just really hadn’t thought to look further for names and faces, if that makes sense?

I loved that though Junior’s diagnosed with Cerebral Palsy, his story isn’t defined by this condition. He’s a talented artist and basketball player as well as a loving son, brother and friend. (This sounds like a eulogy…. He doesn’t die in the story, I promise.)

Another thing that was really well-described was the difference in the sense of community in the town of Reardon vs the sense of community at the reservation. Junior points things out directly a few times, but the story itself shows the ways in which the culture of each is different and how Junior responds differently in each place.

Banned Book

I’d been meaning to read this story for a while because several times I’ve heard of different school districts banning the book for the sexual content. I can understand how, as a conservative parent trying to teach your child that masturbation is morally wrong, handing your child a book which bluntly states that it’s something everyone does and everyone enjoys would be problematic.

On the one hand, I’m not a huge fan of book banning. On the other hand, I’m a fan of having freedom to raise children according to moral and spiritual doctrines of my choosing, even if they’re contrary to popular belief or opinion. So… I’d say it’s a tough call.

I also believe that issues like this within literature can make for a great opportunity to discuss beliefs and why our family believes certain things or does things a certain way that other people might not follow. But it’s certainly not the only opportunity for discussion.

I found this book to be a valuable voice in children’s literature. I understand why some parents might choose not to read this book or allow their kids to read it. Despite the brief content, though, I feel like The Absolutely True Diary of a Part-Time Indian gives an important perspective. For me, it was definitely worth reading.

Content Notes

Profanity/Crude Language Content
Some crude language and mild profanity used infrequently.

Romance/Sexual Content
Junior briefly discusses his feelings about masturbation – mainly, that everyone does it and everyone enjoys it. Later, one of his friends drags him to the library and describes being there as an experience which should give one a metaphorical “boner.”

Junior gives a gift to his best friend Rowdy. Rowdy’s dad makes fun of the gesture, calling Junior derogatory names.

Junior has a girlfriend at school. They exchange brief kisses. Her father makes a somewhat crude comment warning Junior to keep his hands and other areas of interest to himself.

Spiritual Content
Brief references to cultural ceremonies.

After the loss of a family members and a dear friend, Junior grieves. He describes the process, saying at one point that he “mocked God.” A cartoon shows a crowd of people making fun of Jesus.

Violence
Junior gets beat up a lot on the reservation. His best friend’s father beats him up, and his friend in turn beats other kids up. Junior describes the social climate on the reservation as having strict rules which require you to fight anyone who insults you or your family. Later, off the reservation, a boy at school insults him, and Junior punches him. He is puzzled when the boy doesn’t fight back.

Drug Content
References to drug abuse and alcoholism happening at the reservation. Junior’s dad is an alcoholic. Several deaths in the story have a direct relationship to alcohol abuse.

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Review: Miracle by Phillipa Vincent-Connolly

Miracle
Phillipa Vincent-Connolly
Pen Press
Published April 5, 2013

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Despite her mother’s fierce hope for her romantic life, seventeen year-old Orianna is certain she’ll never have a boyfriend. She can barely walk normally thanks to the pain caused by her cerebral palsy. Still, she enjoys the company of good friends and a loving (if romance-obsessed) mother and younger sister.

After seeing the latest movie in the Twilight series, Orianna and her friends gush about handsome Edward Cullen. If only there were men like that in real life, they tell each other. Then, as if he fell right off the silver screen, a rich and handsome new boy named Ashley Mason arrives at school. Though he is totally out of her league and constantly stares at Orianna with a look she can only interpret as disgust, she finds herself drawn to him.

As their tenuous relationship develops, Orianna’s life takes a devastating turn. Out of options, she turns to faith, praying for a miracle to rescue her from the terrible choice she will be forced to make.

In a dreamlike voice, Miracle introduces readers to an intelligent girl longing for true love and independence. Vincent-Connolly bravely tackles the issue of living with cerebral palsy and brings a story familiar to every teen about fitting in and finding love.

While at times the affection between Orianna and Ashley lacks complexity (Why are the two drawn to each other? They just are.), Ashley’s quick temper and emotional highs and lows keep this from being a too-good-to-be-true romance. It is a story of a young man of great passion and a young woman who desires steadiness and normalcy in a world in which not even her body can be counted on to provide them.

Profanity/Crude Language Content
Moderate.

Sexual Content – TRIGGER WARNING
Brief rape scene. Some details given during the assault prior to the rape. See below for details and spoiler.

Spiritual Content (Contains spoiler.)
Orianna prays for a miscarriage after she discovers she is pregnant due to rape. When the miscarriage occurs, she believes God has answered her prayers and ended her pregnancy.

Violence
Brief rape scene. References to a fist-fight. No details.

Drug Content
Orianna and Ashley attend a party and participate in under-age drinking. Some people use cocaine. When Ashley sees this, he and Orianna leave the party.

Note: I received a free copy of this book in exchange for my honest review.

SPOILER ALERT
The story’s tension level ratchets up quickly following Orianna’s rape at a party. Desperate, she first attempts suicide and then confesses the truth to her friends: she is pregnant. She reaches out in prayer, pleading with God to end her pregnancy. It’s easy to imagine any girl in Orianna’s position feeling precisely the same way.

When Orianna experiences a miscarriage, she believes this is God coming through for her. She’s new in her faith and lacks any real form of spiritual mentoring, so it doesn’t seem terribly unbelievable that she’d draw such a conclusion. Still, it’s a little hard to swallow the idea that God basically terminated her pregnancy at her request. One can understand the relief a rape victim would feel, but it is tinged with discomfort.

As a plot device, it also seems weak. Because a central theme of the story is Orianna’s questions about her own worthiness for love, it seems like a miscarriage due to medical reasons might be another opportunity to raise the stakes on that struggle.

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